For individuals living with epilepsy, caregivers, and families, knowing who to contact and what to do in a crisis is essential. These resources focus specifically on urgent situations—seizure emergencies, sudden health changes, or broader life crises.

 

1. 24/7 Epilepsy HelplinePhone:

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800‑332‑1000 (English),

866‑748‑8008 (Español)

 

Connect with trained staff who can guide you during a seizure emergency, connect you to local services (medical, housing, food, or mental health support), and provide emotional support.

 

2. Rescue Medication GuidanceAccess instructions on when and how to use rescue medications for prolonged or cluster seizures.Epilepsy Alliance America provides training videos in English and Spanish to ensure correct use in urgent situations.

 

3. Seizure Action Plans (SAPs)Keep a personalized emergency plan on hand, including:Seizure types and usual durationSteps to keep the person safe during a seizureEmergency contacts and hospital informationTemplates and examples available via the Seizure Prepared U Resource Hub.

 

4. Seizure ID & Medical Info AccessSeizure ID devices (wristbands, cards, QR-enabled tags) provide first responders immediate access to vital medical information in an emergency.Helps ensure prompt and accurate care when every second counts.

 

5. Disaster & Crisis PreparednessFor broader emergencies (natural disasters, evacuations, power outages):Use resources like Ready.gov and the American Red Cross for general preparedness.

 

Epilepsy Foundation guidance highlights managing medications, seizure monitoring, and safety during disasters.

 

 

Quick Reference TableCrisis SituationResource / ActionSeizure lasting >5 minutesCall 911; use rescue medication if prescribedMultiple seizures in a short periodFollow SAP; call emergency contactsFirst-time seizureSeek immediate medical evaluationBroader emergency / disasterAccess local emergency services, shelters, medication assistanceNeed guidance or supportCall Epilepsy Helpline 24/7