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What Does a Seizure Feel Like? Understanding the Sensory Experience
Seizures can feel different for everyone. For some, they involve shaking or loss of awareness. For others, they begin with subtle warning signs like a strange smell, déjà vu, a sudden wave of fear, or a rising feeling in the stomach. Understanding these experiences can help people recognize their own seizure patterns and feel less alone.
15 hours ago4 min read


A Young Adult’s Guide to Dating with Epilepsy
Dating already comes with enough questions: Do they like me? Did I say the wrong thing? What should I wear? When you’re living with epilepsy, there’s often one more thought in the background: When should I tell them? Whether you were diagnosed years ago or are still adjusting to life with seizures, opening up to someone new can feel intimidating. But epilepsy doesn’t define your relationships—it’s simply one part of your story. At Young Adults with Epilepsy, we believe that t
Apr 284 min read


Guide to Seizure First Aid
One of the hardest parts of living with epilepsy is not always the seizure itself. Sometimes it is the fear of having one in front of other people. It can sit quietly in the background of everyday life. In class. At work. On a date. Out with friends. You may know what your seizures feel like, what your recovery is usually like, and what helps you most afterward. But the bigger question can still linger: Will the people around me know what to do? That fear is real. It is also
Apr 215 min read


Women with Epilepsy: Navigating Health, Hormones, and Resilience
Epilepsy affects millions of people worldwide, but the experience of living with epilepsy can be very different for women. In recognition of International Women’s Month, it’s important to talk about the unique challenges women face when managing epilepsy. Young adulthood is often a time of major life transitions, starting university, building careers, exploring relationships, and becoming more independent. For young women living with Epilepsy, managing seizures may also mean
Mar 255 min read


A Guide for the Newly Diagnosed with Epilepsy
Receiving a diagnosis of epilepsy can feel overwhelming. One moment life is moving forward as usual, and the next you are introduced to unfamiliar medical terms, new medications, and many unanswered questions. If you have recently been diagnosed, the most important thing to understand is this: you are still the same person you were before the diagnosis. What has changed is that you now have more information about how your brain works and with that knowledge comes the ability
Mar 164 min read


How Dangerous Are Seizures and When to Seek Help
Living with epilepsy as a young adult means juggling careers, relationships, and the occasional unpredictability of a seizure. It is completely normal to feel anxious about navigating life with a seizure disorder. However, taking back your power starts with education. By deeply understanding the real risks associated with seizures and knowing exactly when a situation shifts from routine recovery to a medical emergency, you can navigate your epilepsy with confidence. Let's ex
Mar 134 min read


Pruebas Genéticas Y Epilepsia
Vivir con epilepsia puede generar muchas preguntas, especialmente sobre por qué ocurre. Una herramienta que ayuda a dar respuestas es la prueba genética. En esta publicación, analizaremos qué es la prueba genética, cómo se relaciona con la epilepsia y lo que debe saber sobre cómo hacerse la prueba. Comprendiendo Las Pruebas Genéticas Las pruebas genéticas son pruebas médicas que examen el ADN en busca de cambios o mutaciones. En términos sencillos, es como una revisión ortogr
Mar 48 min read


Desencadenantes de la epilepsia: Cómo reconocer y reducir el riesgo de sufrir convulsiones
Vivir con epilepsia siendo un adulto joven puede ser difícil, pero comprender los factores que desencadenan tus convulsiones puede ayudarte a recuperar el control. Es posible que notes que tus convulsiones se producen con mayor frecuencia en determinadas situaciones, por ejemplo, cuando estás muy estresado o extremadamente cansado. Estas situaciones suelen ser factores desencadenantes de convulsiones: cosas que aumentan la probabilidad de que se produzca una convulsión. Los d
Feb 2319 min read


What a Seizure Feels Like: Beyond the Seizure Itself
What does a seizure feel like? From subtle warning signs to recovery, learn the stages, symptoms, and why every experience can feel different.
Feb 197 min read


The Bi-Partisan Epilepsy Caucus, Explained—and How You Can Advocate
Jimmy Panetta supports the bipartisan Epilepsy Caucus—discover how it works and how you can advocate for the epilepsy community!
Feb 153 min read


Hormones and Epilepsy
Hormones can influence seizure activity in both women and men. In women, changes in estrogen and progesterone during the menstrual cycle, pregnancy, postpartum, and menopause may affect seizure patterns, sometimes resulting in catamenial epilepsy. In men, testosterone levels can also impact brain excitability, and some medications may affect hormone balance. Tracking seizures alongside hormonal changes supports more personalized epilepsy care.
Feb 94 min read


Comprendiendo La Epilepsia: Separando Los Mitos De Los Hechos
La Verdad Detrás de los Conceptos Erróneos Comunes Vivir con epilepsia o apoyar a alguien que la padece puede ser difícil. Los malentendidos pueden provocar estigmatización y miedo. Es fundamental comprender la verdad que se esconde tras los mitos comunes sobre esta enfermedad neurológica. Mito: La Epilepsia Es Contagiosa Hecho: La epilepsia es una condición neurológica, no es una infección. No se puede "contagiar" la epilepsia de otra persona, independientemente de lo cerca
Feb 66 min read


Los Diferentes Tipos De Convulsiones Y Cómo Se Manifiestan
La epilepsia puede manifestarse de forma muy diferente en cada persona. Cuando mucha gente oye la palabra “convulsión”, se imagina a alguien cayéndose al suelo y retorciéndose. En realidad, las convulsiones pueden aparecer desde breves lapsos de atención o espasmos musculares hasta convulsiones en todo el cuerpo. No todas las convulsiones implican espasmos, y algunas pueden ser tan sutiles que pasan desapercibidas. En esta publicación, explicaremos los principales tipos de co
Jan 2710 min read


YAWE at 3: Empowering Young Adults with Epilepsy Through Support & Community
In just three years, Young Adults with Epilepsy has grown from a vision into a trusted space for young adults seeking understanding, connection, and hope. Through peer support, advocacy, and shared lived experience, YAWE continues to prove that community can be life-changing—for individuals and families alike.
Jan 42 min read


The Different Types of Seizures and What They Look Like
Explore the major types of seizures—from focal to generalized—and their key signs and symptoms. Gain the knowledge you need to recognize seizure patterns and support effective epilepsy management.
Dec 4, 20259 min read


Generic vs. Brand Seizure Medications: How to Save with Discount Programs
Understand the difference between generic and brand-name medications, how they compare in effectiveness, safety, and cost, and what to consider when choosing the right option for you.
Dec 4, 202511 min read


Epilepsy Triggers: How to Recognize and Reduce Your Risk of Seizures
Discover everyday epilepsy triggers and simple strategies to lower your seizure risk and feel more in control.
Dec 4, 202516 min read


Dan's College Journey
Everyone's journey through epilepsy is different, including when dealing with school.
Oct 17, 20255 min read


College Safety and Epilepsy: What You Need to Know
Moving to college can be overwhelming for anyone. But here are some questions to ask yourself to help you out!
Oct 6, 20255 min read


Understanding the Connection Between Epilepsy and Mental Health
Why Epilepsy and Mental Health Often Go Hand-in-Hand People with epilepsy experience anxiety and depression at twice the rate of the general population. Studies show: 27–35% of people with epilepsy experience depression. 20–25% have an anxiety disorder. Why does this happen? Unpredictable seizures create daily uncertainty and fear. Loss of independence , such as the ability to drive or maintain steady employment. Side effects of seizure medications can alter mood-regulat
Jul 9, 20253 min read
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