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Epilepsy Changed My Timeline—Not My Destination
The Timeline We Expect When we turn 15, we normally go to the DMV with our parents, take our permit test—hopefully pass—and get our permit. Then we meet all the requirements, take the driving test, and get our license. Right? Wrong. Epilepsy is an invisible illness that loves to sneak up on the timeline we think we have planned for our lives. Plans change, and sometimes we have to return to the DMV at 21 to try to get our permit—only to have the process feel nearly impossible
2 days ago3 min read


The Epilepsy Dating Red Flags No One Talks About
Dating with epilepsy can bring extra layers of trust, safety, and self-advocacy. This guide breaks down common relationship red flags, from partners who dismiss seizure first aid to those who push boundaries or use epilepsy as emotional leverage, while highlighting the green flags of respectful, supportive love.
3 days ago6 min read


Making Waves: We Planned the Gala. Our Community Wrote the Story
What happens when a carefully planned fundraising Gala takes on a life of its own? The answer wasn't found in the program—it was in the unscripted moments that brought our community together and reminded us why this work matters.
Aug 54 min read


Going Out with Epilepsy: A Safety Guide for Nights Out, Parties, and Social Life
A practical guide for young adults with epilepsy on enjoying parties, concerts, dates, and nights out while planning around triggers, medication, sleep, alcohol, seizure first aid, and recovery time.
Jul 1810 min read


Common Challenges for Young Adults Living with Epilepsy
Young adulthood is full of independence, ambition, relationships, and major life decisions. This guide explores how epilepsy can affect driving, work, mental health, social life, and medical care while offering practical ways to move forward with confidence and control.
Jun 304 min read


Seizures vs. Epilepsy: Understanding the Brain’s Electrical Rhythm
Understand the difference between a seizure and epilepsy, including what causes one-time seizures, how epilepsy is diagnosed, and why the right label matters for treatment, driving, medication decisions, and long-term health planning.
Jun 144 min read
A note from our President
As a physician, I can only speak for myself, but there is something profoundly moving about watching a young adult emerge from fear, shame, grief, or stigma into authentic self-belief. Once they no longer feel alone, they communicate differently, trust differently, and participate more fully in their own care. In many ways, healing begins there. Communication deepens, trust grows, danger signals become easier to detect, medical guidance is better received, and the physician-p
Jun 42 min read


How to Support Someone with Epilepsy: Seizure First Aid, Independence, and Everyday Care
Supporting someone with epilepsy starts with calm, informed care. Learn how to use seizure first aid, respect independence, recognize invisible challenges, and create a shared plan that helps them feel safe without feeling controlled.
May 273 min read


When Epilepsy Stigma Meets Understanding: How One Classroom Changed the Conversation
A personal reflection on epilepsy stigma, a childhood seizure, and a classroom of students who revealed how empathy begins when fear is replaced with understanding.
May 184 min read


What Does a Seizure Feel Like? Understanding the Sensory Experience
Seizures can feel different for everyone. For some, they involve shaking or loss of awareness. For others, they begin with subtle warning signs like a strange smell, déjà vu, a sudden wave of fear, or a rising feeling in the stomach. Understanding these experiences can help people recognize their own seizure patterns and feel less alone.
May 84 min read


A Young Adult’s Guide to Dating with Epilepsy
Dating already comes with enough questions: Do they like me? Did I say the wrong thing? What should I wear? When you’re living with epilepsy, there’s often one more thought in the background: When should I tell them? Whether you were diagnosed years ago or are still adjusting to life with seizures, opening up to someone new can feel intimidating. But epilepsy doesn’t define your relationships—it’s simply one part of your story. At Young Adults with Epilepsy, we believe that t
Apr 284 min read


Guide to Seizure First Aid
One of the hardest parts of living with epilepsy is not always the seizure itself. Sometimes it is the fear of having one in front of other people. It can sit quietly in the background of everyday life. In class. At work. On a date. Out with friends. You may know what your seizures feel like, what your recovery is usually like, and what helps you most afterward. But the bigger question can still linger: Will the people around me know what to do? That fear is real. It is also
Apr 215 min read


Women with Epilepsy: Navigating Health, Hormones, and Resilience
Epilepsy can affect women in unique ways, from hormonal changes and medication side effects to pregnancy, mental health, and stigma. Learn how knowledge, care, and support can help women with epilepsy move forward confidently.
Mar 255 min read


A Guide for the Newly Diagnosed with Epilepsy
A practical guide for anyone newly diagnosed with epilepsy, covering medication routines, sleep, triggers, seizure safety, recovery, and support.
Mar 164 min read


How Dangerous Are Seizures and When to Seek Help
Learn when a seizure is routine, when it becomes a medical emergency, and how young adults with epilepsy can protect their independence through safety planning, first aid, and self-advocacy.
Mar 134 min read


Pruebas Genéticas Y Epilepsia
Vivir con epilepsia puede generar muchas preguntas, especialmente sobre por qué ocurre. Una herramienta que ayuda a dar respuestas es la prueba genética. En esta publicación, analizaremos qué es la prueba genética, cómo se relaciona con la epilepsia y lo que debe saber sobre cómo hacerse la prueba. Comprendiendo Las Pruebas Genéticas Las pruebas genéticas son pruebas médicas que examen el ADN en busca de cambios o mutaciones. En términos sencillos, es como una revisión ortogr
Mar 48 min read


Desencadenantes de la epilepsia: Cómo reconocer y reducir el riesgo de sufrir convulsiones
Vivir con epilepsia siendo un adulto joven puede ser difícil, pero comprender los factores que desencadenan tus convulsiones puede ayudarte a recuperar el control. Es posible que notes que tus convulsiones se producen con mayor frecuencia en determinadas situaciones, por ejemplo, cuando estás muy estresado o extremadamente cansado. Estas situaciones suelen ser factores desencadenantes de convulsiones: cosas que aumentan la probabilidad de que se produzca una convulsión. Los d
Feb 2319 min read


What a Seizure Feels Like: Beyond the Seizure Itself
What does a seizure feel like? From subtle warning signs to recovery, learn the stages, symptoms, and why every experience can feel different.
Feb 197 min read


The Bi-Partisan Epilepsy Caucus, Explained—and How You Can Advocate
Jimmy Panetta supports the bipartisan Epilepsy Caucus—discover how it works and how you can advocate for the epilepsy community!
Feb 153 min read


Hormones and Epilepsy
Hormones can influence seizure activity in both women and men. In women, changes in estrogen and progesterone during the menstrual cycle, pregnancy, postpartum, and menopause may affect seizure patterns, sometimes resulting in catamenial epilepsy. In men, testosterone levels can also impact brain excitability, and some medications may affect hormone balance. Tracking seizures alongside hormonal changes supports more personalized epilepsy care.
Feb 94 min read
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