Sam, nuestra líder del grupo de apoyo en español, comparte las etapas de aceptación de su diagnóstico en su vida.

Epilepsy affects millions, yet stigma and misunderstanding still surround it—especially for young adults. Advocacy changes that. By raising awareness, educating others, and pushing for policy change, advocacy empowers people with epilepsy to speak up, find community, and shape a more inclusive future. It’s not just about being heard—it’s about being seen, supported, and driving real change.

For young adults with epilepsy, finding a podcast that truly reflects their experiences can feel nearly impossible. Out of the 3 million+ podcasts out there, only 30 to 50 focus on epilepsy—that’s less than 0.002%. Yet epilepsy affects 1 in 26 people. If podcast topics matched real-life impact, there’d be over 115,000 shows. Instead? Just a handful—and even fewer are created by and for young adults living with epilepsy. That’s why we launched ours: to fill the gap, spark conn