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Pippa's International Quest of Activism
The road to becoming an advocate can be hard, especially while dealing with epilepsy. But Pippa shares how she has done it.
Jun 44 min read
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De la Negación a la Defensa: Mi Viaje de 20 Años para Aceptar la Epilepsia
Sam, nuestra lÃder del grupo de apoyo en español, comparte las etapas de aceptación de su diagnóstico en su vida.
Jun 35 min read
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From Denial to Advocacy: My 20-Year Journey to Accepting Epilepsy
Sam, our Spanish Peer Support Lead, shares the stages of accepting her diagnosis in her life.
Jun 35 min read
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Epilepsy Advocacy: Why It Matters—Especially for Young Adults
Epilepsy affects millions, yet stigma and misunderstanding still surround it—especially for young adults. Advocacy changes that. By raising awareness, educating others, and pushing for policy change, advocacy empowers people with epilepsy to speak up, find community, and shape a more inclusive future. It’s not just about being heard—it’s about being seen, supported, and driving real change.
May 244 min read
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How Podcasts Are Shaping Conversations About Epilepsy
For young adults with epilepsy, finding a podcast that truly reflects their experiences can feel nearly impossible. Out of the 3 million+ podcasts out there, only 30 to 50 focus on epilepsy—that’s less than 0.002%. Yet epilepsy affects 1 in 26 people. If podcast topics matched real-life impact, there’d be over 115,000 shows. Instead? Just a handful—and even fewer are created by and for young adults living with epilepsy. That’s why we launched ours: to fill the gap, spark conn
May 183 min read
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