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ABOUT

MISSION

Programs

"The change from pediatric to adult care is a major transition for patients with epilepsy. There's concern that if a patient can't make this transition well, they are at a higher risk of not seeing doctors in a timely fashion, running out of medications or having unexpected seizures without a plan to respond safely."

JAMA

Peer Counseling

Psychosocial Counseling (free)

12 week program, led by a LMFT & peer counselor will blend psychosocial education, problem identification/goal-setting and behavioral modeling & reinforcement in a group format (6-10 YAWE) to improve epilepsy and mental health outcomes.

Please visit our Peer Counceling page for more information

Online meeting

Monthly Workshops

Monthly workshops covering topics important to YAWE

Previous topics include

- Reclaiming Autonomy and Control Over Your Life

- Navigating Highs and Lows of Epilepsy

- Mastering Self Care as a Young Adult with Epilepsy

Please visit our events page to find upcoming workshops

Group Discussion

A Long View

Program Timeline: Our inaugural group counseling program is set to launch in the third quarter of the year, with a thorough evaluation to follow in the fourth quarter. This will allow us to reflect on our impact, learn from our experiences, and continually improve our services.

Evaluation Metrics:

  • Depression Symptomatology: Assessment of changes in symptoms of depression among our community members.

  • Quality of Life Metrics: Evaluation of improvements in the quality of life of our members, taking into consideration various factors like independence, social engagement, and overall well-being.

  • Seizure Activity Monitoring: Regular tracking and measurement of seizure activity among our members to evaluate the effectiveness of interventions.

  • Negative Health Events Tracking: Monitoring and evaluation of adverse health events such as seizures, emergency room visits, and hospitalizations.

  • Community and Medical Services Utilization: Analysis of the extent to which our community members utilize available community and medical services, as a measure of our success in connecting them with necessary resources.

  • Client Satisfaction Survey: Implementation and analysis of client satisfaction surveys to gauge the effectiveness and impact of our programs and services.

  • Counseling Effectiveness (AESMMI-65): Utilization of the AESMMI-65 tool to measure the effectiveness and impact of our counseling services.

  • Program Participation and Reach: Assessment of the extent of participation in our programs and the reach of our services within the target demographic.

  • Event Participation and Reach: Evaluation of attendance and engagement levels in our events to measure their success and impact on the community.

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